Monday, December 29, 2008

The Winter of Listening by David Whyte

Carla who who feels like a friend and from whom i buy a lot of candles-(check out the beautiful WINTER one) has one of my very favorite blogs.-she posted this and i remembered how much i liked it...and all of David Whyte's poems

No one but me by the fire,
my hands burning
red in the palms while
the night wind carries
everything away outside.

All this petty worry
while the great cloak
of the sky grows dark
and intense
round every living thing.

What is precious
inside us does not
care to be known
by the mind
in ways that diminish
its presence.

What we strive for
in perfection
is not what turns us
into the lit angel
we desire,

what disturbs
and then nourishes
has everything
we need.

What we hate
in ourselves
is what we cannot know
in ourselves but
what is true to the pattern
does not need
to be explained.

Inside everyone
is a great shout of joy
waiting to be born.

Even with the summer
so far off
I feel it grown in me
now and ready
to arrive in the world.

All those years
listening to those
who had
nothing to say.

All those years
forgetting
how everything
has its own voice
to make
itself heard.

All those years
forgetting
how easily
you can belong
to everything
simply by listening.

And the slow
difficulty
of remembering
how everything
is born from
an opposite
and miraculous
otherness.
Silence and winter
has led me to that
otherness.

So let this winter
of listening
be enough
for the new life
I must call my own.

David Whyte

Thursday, December 18, 2008

with humble gratitude

2 news stories on pbs greeted my morning on the way to an 8 a.m. dental appt-both of which filled me with gratitude and a humble awareness of the blessedness surrounding me.....
50,000 people in New Hampshire will not have power thru christmas......no lights, no way to cook christmas dinner, no heat........ and i have a fit when 1 string of about 1000 lights goes out on my tree..........
82 homeless people who died on the streets of s.f. were remembered in a memorial yesterday-and i feel overwhelmed at the clutter filling my space and home-all this space and all mine........
it is so easy for me to get carried away at this time of year -
i overdue everything from decorating and shopping and then feel guilty... i work hard every day on my addictive personality but it doesn't always work........i did put out only about 1/2 of my ms anna claus and angel collection and the muppet ornaments are not all on the tree......
a very difficult thing for me to do....
my prayer is for all those who lack the blessings that i try to be grateful for each moment
i wish i could be more comfortable with the simple life..........
those in N.H and on the streets everywhere have no choice but to know what that means

Thursday, December 04, 2008

contrasts





a play day with ben was sure a study in contrasts........
autumn leaves-cool crisp weather-
leave piles-

bare bottoms

-and bundling up for a trip to christmas in the park.....
and in between
constructing the manger
...
.and sending the polar express on its way......
.
i'll be in bed early tonite !

Tuesday, December 02, 2008

on the road again

another trip 45 minutes south to the lymphedema clinic for a fitting for a compression piece for my swollen breast. it is the same black padded heavy material sewn in criss cross fashion to move the fluids that are trapped in my breast on the surgery side.
the way they keep explaining it to me is that the the whole quadrant of my body has been affected by radiation and the lymphatic fluids are just plain stuck and backed up forever.
the 2x weekly of MLD (manual lymphatic drainage) with the physical therapist and wearing these damn garments are what tries to keep things at bay and maintain the swelling.
in order to wear the breast piece, i had to get mastectomy bras which has a "pocket" (usually for a prosthesis) in which to insert this compression piece. you can imagine how classy and great thislooks under clothes..... so many things i can't wear without looking like some kind of monster.... i choose to skip the garment for special occasions out.....
some people have fanny packs - i have a booby pack !
the bras are expensive and then the fitting fee on top of that set me back once again.....not covered by any insurance even tho this is definitely treatment.......
so way over $100 later - i 'm on the road again -hopefully to keep my upper quadrant working.....
the road is hard and long and sadly there is no end to this journey.........

Thursday, November 20, 2008

pain,pain,pain

today is an extremely bad pain day - arm legs, feet, back, neck.....
as always not sure if it's the polymyalgia or what......
i've been off the medication that supposedly causes such bad pain for a month now.....
tamoxifan is not supposed to be pain producing -so not sure the cause
all i know is i hurt all over and am moving very slowly and wanting it all to go away.....
the lymphedema arm is the worst - not sure if that is the cause or if i've done something to hurt the arm and shoulder....
it is true that the broken shoulder never healed completely....
am noticing some neuropathy(numbness) in my feet so have to extra careful applying the brakes....
this is a common side effect of radiation....

Wednesday, November 12, 2008

and.........

and add to that the frustration and hardship of the lymphedema garments and my OBGYN not being covered by insurance and the stress increases.
My OBGYN opted out of all insurance programs because of the nightmare of it all so her visits are out of pocket - $250 for an annual and then i have follow ups scheduled which won't be as much but still budget scrunch....
THEN......
the lymphedema sleeves and gloves are outrageously expensive...the night time big black one which you have all seen was $500 - the newer daytime glove $159 and sleeve $89...
add to that an oversleeve which i need to order for the nigh one....... the compression isn't enough as the swelling has gone done a few millimeters....this will keep happening so the cost is ongoing.....
plus these garments from daily wear need to be replaced ever so often !!!!!!!
then there's the breast issue - ( i know ! too much info ) i need to wear a compression piece over the breast so one had to be made and then mastectomy bras which have pockets purchased so that the piece can slide in to wear all day.....all previous bras are sitting forever ina drawer unuseable probably for life..... what to do with them ????? some are still in good condition and expensive...!!!!!
The nurse in morgan hill who fits me for all this- always submits the bills to medicare to nudge them but they are always returned.....
so it's just one more stress to deal with.....
thankfully i am cancer free..........but it still is upsetting when people think that it is all over.......
medication by the fistful and these expenses make life less than joyous some days......

Sunday, November 09, 2008

and i forgot to mention the 2 dentist appts. for adjustments to bridge and some kind of really sore mouth - probably drug induced.......

Friday, November 07, 2008

I WANT A DAY OFF

no one will much care about this post but felt like venting about it........
today the only stop was the pharmacy for more drugs for a bladder infection....
but each week when i look at my date book, i long for a day without a medical appt of some sort.....a day just for me to do whatever i want.....
here is how it has gone just this past 2 weeks and it's more or less always this way....

2 physical therapy appts for lymphedema drainage massage( this is a weekly regimen)
OBGYN annual physical, pap smear and an order for an ultrasound to be scheduled for followup on fibroids
rheumatologist appt for polymyalgia with order for a bone density to be scheduled
eye exam appt with opthamologist
community breast project counseling appt - weekly
trip to morgan hill for fitting for compression glove and sleeve
6 month check up -mammogram and ultrasound
appt with surgeon to discuss those results ( which were all OK!!)
appt with internist to check on heart murmur found by surgeon and OBGYN
2 trips to hospital lab for blood cultures
and so it goes.......
next week - pretty appt full also - ultrasounds for fibroid followup and one for annual checking for kidney stones AND scheduling a visit to cardiologist to check on the murmur...
most all of these appts mean managing drug dosage so i am a walking pharmacy and am also tired of that..........
THE GOOD NEWS
I have the very best of doctors who are careful, efficient and on top of everything as my body grows older and in need of more attention......
but i still want a day off!!!!!!!

Wednesday, November 05, 2008

HOORAY BARACK !



Three cousins - sweaty, popsicle-stained, and in various states of undress - watch history in the making -
picture compliments of chris and christa

Tuesday, November 04, 2008

BLESSED BE !




May we celebrate this miracle with hope and peace in our hearts.
May the spirits of the slaves who built the white house rejoice in this amazing grace....

Election day thoughts

From one of my favorite web sites - Abby of the Arts....

Wage peace with your breath.
Breathe in firemen and rubble,
breathe out whole buildings and flocks of red wing blackbirds.
Breathe in terrorists
and breathe out sleeping children and freshly mown fields.
Breathe in confusion and breathe out maple trees.
Breathe in the fallen and breathe out lifelong friendships intact.
Wage peace with your listening: hearing sirens, pray loud.
Remember your tools: flower seeds, clothes pins, clean rivers.
Make soup.
Play music, memorize the words for thank you in three languages.
Learn to knit, and make a hat.
Think of chaos as dancing raspberries,
imagine grief
as the outbreath of beauty or the gesture of fish.
Swim for the other side.
Wage peace.
Never has the world seemed so fresh and precious:
Have a cup of tea and rejoice.
Act as if armistice has already arrived.
Celebrate today.

-Judyth Hill
__________________
No matter who you are voting for today, there is much fear and anxiety in the air. I invite you on this election day to wage peace for a few hours. Instead of sitting anxiously awaiting the final results, let your breath transform the world around you.

This day matters tremendously for our sense of hope and unity as a collective body. I pray that whoever is elected, that those on the margins are seen and responded to, those who are suffering are cared for.

In the meantime, contribute your own act of compassion and peace. Meditate with the poem above, allowing its words to be knit into your bones. Go for a long walk spreading seeds of beauty on every corner. Hold a loved one and press your body close, listening for the heartbeat of love. Sing a song that makes you cry at its tenderness.

Remember that each of these acts matters, truly. Remember that you are the center of peace in the world, each and every one of you.

Monday, November 03, 2008

www.gratefulness.org
WORD FOR THE DAY
Monday, Nov. 3

One must have chaos in oneself
in order to give birth to a dancing star.

Friedrich Nietzsche

Sunday, November 02, 2008

HALLOWEEN

A long day in north country....
first to liam's school parade - where his class did the limbo as part of the festivities


then on to ronan's parade - no costumes allowed but fantastic masks the kids had made.


I got to sit in on circle time which i just loved.......it was a showing of each child's large painting and how and why they created it....
back to the house for getting dressed as the star wars duo


and then a ride a little south to meet up with ben as gustafer yellowgold -someone everyone needs to know!



the rain didn't stop us and we trick and treated up and down the hill.....
being with little people as they get intothe spirit of pretend and celebrate this ancient ritual brings me so much joy and fills my heart and soul....
the ride and the rain didn't matter at all

Wednesday, October 29, 2008

morning

From my so favorite web site....wonderful gifts..... check it out

May this be a morning of innocent beginning,
When the gift within you slips clear
Of the sticky web of the personal
With its hurt and its hauntings,
And fixed fortress corners,

A morning when you become a pure vessel
For what wants to ascend from silence.

—John O'Donohue

Monday, October 27, 2008

remembering

This is from another creative web site that i check often....

This weekend is the Celtic feast of Samhain and the Christian celebration of All Saint's Day and All Soul's Day which begins a whole month in honor of those who have died.

For the Celts this is the beginning of a new year and an especially thin time when the veil between heaven and earth is more transparent. As you begin a new year, you might consider calling to mind the memory of your ancestors and offering gratitude for all they have done to make it possible for you to exist. We tend to neglect our ancestral heritage in our culture, but in other cultures remembering the ancestors is an intuitive and essential way of beginning anything new. We don't recognize the tremendous wisdom we can draw upon from those who have traveled the journey before us and whose DNA we carry in every fiber of our bodies. As a way of honoring the past before we welcome in the future, consider engaging in practices that help you to connect with your own ancestors and the stories that form the roots of your own. Consider weaving these practices into your New Year's ritual as a way of recognizing that we never leave the past behind, but simply build on its foundations. A tree needs a strong root system to be able to reach its branches wide and tall.

Practice: Ancestor Stones
In the winter of 1955, the great psychologist Carl Jung chiseled the names of his paternal ancestors on three stone tablets and placed them in his courtyard. "When I was working on the stone tablets," he wrote, "I became aware of the fateful links between me and my ancestors." Consider going on a walk in the woods or on the beach at the end of the year and gather stones together. Bring them home and paint the names of your ancestors onto each stone and place them in your altar space or create a special altar for them. Make some time to hold each of them in your hands, make space within yourself to receive their gifts and wisdom, and reflect on the journeys of the people whose stories are so much a part of your own.

I have brought home many stones from the ocean and other places and intend to do this simple remembrance hopefully sometime next week while it is the season of remembering.....

Wednesday, October 22, 2008

Spiritual Practice
of the Day


The cloud weeps, and then the garden sprouts.
The baby cries, and the mother's milk flows.
The Nurse of Creation has said, Let them cry a lot.

This rain-weeping and sun-burning twine together
to make us grow. Keep your intelligence white-hot
and your grief glistening, so your life will stay fresh.
Cry easily like a little child.
— Rumi - translation by Coleman Barks

To Practice This Thought: Express your emotions freely to keep your life fresh.

Tuesday, October 21, 2008

the lymphedema journey continues

this post is probably goiong to be TMI (too much information)for some of you as i describe my visit with the RN who runs the lymphedema clinic in Morgan Hill (about 45 minutes away.)
I was there for 2 hours to get fitted for some kind of bra or garment that would provide compression to my very swollen and fluid filled breast. Her first suggestion
which was heavy black quilted fabric in this style, i turned down as something i know i would not wear.....
since this condition is a lifetime achievement with no cure, it doesn't make a whole lot of difference, i hope..........
we then proceeded to try over a dozen different styles of post mastectomy bras that have pockets in them into which i will insert a piece of heavy quilted garment similar (but a little smaller) to thisthat will provide compression.....this is a less satisfactory but for me more realistic solution.... so much for lots of my clothes that will just not look or fit right in this get up......i got 2 so that i don't have to wear the same one every day........
i then was fitted for the arm sleeve and glove
which i will wear during the day -all day and wear the heavy black one that i've been wearing daily only at nite....
it was a horrific couple of hours accompanied by quite a few meltdowns...
it's all pretty overwhelming......
add to the trauma the fact that insurance pays for none of these treatments so charging $400 later ( and that's without a custom glove which she recommended) the trauma intensifies.....
if i had had a mastectomy, it all would be covered!!!!! so much for our health care system......
i am worn out and feeling pretty low.....
tomorrow the sun will shine and i will breathe a little easier.... i hope sleep comes quickly tonite....

Saturday, October 18, 2008

the hard part

it's that time again = laying in bed and hurting a lot....every nite i want to get up and write about the pain - and i don't - tonite i did get up.....
tonite is a particularly hard one -not sure why
pain everywhere which i assume is the drugs and/or polymyalgia, but tonite the lymphedema is aching a lot...arm, hand, fingers.....i even looked it up again to see if i was crazy and read an article on the "truncal" lymphedema pain which i have in my right breast and chest and shoulder....it's very real and often worse than the pain in the arm....so i just lay there and hurt - i pack on ice as the physical therapist suggests that versus heat...i need to do some more reading on that.....
the internet is loaded with lymphedema pages -but they are overwhelming to read so i haven't done a lot of research - i just kind of ignore it as much as i can which is nearly impossible because of the compression sleeve and the pain
i am so very tired of pain and the pain medication that doesn't really work.............
tonite i can't stop crying................................
the beautiful autumn day and the flower arrangements i worked on are a fond memory


Thursday, October 16, 2008

my hero gloria steinem


yes - hero she is
and is one of the women being honored by Maria Shriver so she appeared on oprah today........
one of the things she said in the conversation will stick with me forever......Many things she has said over the years have become part of my life.....and today i really loved what she said that fits what i have felt so often.......it comforted me to have my sadness validated and know that what i often feel is not depression...
I have come to know...
Depression is when nothing matters
Sadness is when everything matters


Tuesday, October 14, 2008

joy, joy, joy




the three munchkins came for a sleepover on sat nite so we could make our halloween cookies - a holiday tradition.....christopher joined us to provide an extra pair of hands.....as always the boys were more than angels - we created our "rules" for the visit and posted them, ran around in the dark with glo sticks - a $1.00 well spent for nighttime fun, wished on the almost full moon, watched charlie brown great pumpkin dvd for a bedtime story and then all cuddled down really late and really tired..........everyone went right to sleep........
sunday morning was cookie making time with of course lots of sugar sprinkles.....auntie christine joined us for the great dough roll out...... i think more dough got eaten than made into cookies.....
then off to the playground and back for a picnic lunch in the backyard.....
i am still revelling in the joy that 3 little boys can bring.........my heart is filled to overflowing and i am lonely and sad that they are all gone home.....the previous post fits the situation well.......
my camera is taking some really blurry pictures, but you get the idea

Monday, October 13, 2008

TEARS

I absolutely love this quote found today on a web site i try to check out often....
When tears come, I breathe deeply and rest. I know I am swimming in a hallowed stream where many have gone before. I am not alone, crazy, or having a nervous breakdown . . . My heart is at work. My soul is awake.

Mary Margaret Funk in Thoughts Matter



To Practice This Thought: The next time you cry, explore what your heart and soul are telling you through your tears.

Saturday, October 11, 2008

Breathing easier

HOORAY for "normal" mammogram and ultrasound for the 6 month checkup.....
i can now breathe a little easier for the next 6 !!!!!!

Tuesday, October 07, 2008

Retreat to the Ocean


no appointments today..... first free day in a long time.... nervous about thursday's mammogram and ultrasound so decided to run away to the ocean where i always find healing and peace.
I walked a lot - sand walking is murder on the back and legs....extra pain tonite....
took my little camera and just took lots of pictures of the beauty....wish i had a better camera but am pleasantly surprised at what i did capture without a viewfinder in bright sun.....
there was even a sleeping seal and i had the beaches all to myself....
you can see them at Snapfish- it's free to join and look....
This beautiful face of the goddess was laying wait for me.....of course she came home with me....

Monday, October 06, 2008

Life in the Pain Lane

pain, pain, pain, and more pain....it's everywhere....even in my toes...
is it the PMR, the anti-cancer drugs or left over cancer treatment that is the cause ? some people have taold me their bodies have never been the same since chemo and radiation treatments....
doctors don't know..... they test, they prescribe, they commiserate and send me off with more pain....
i'm taking narcotics !!!!!! 4 times a day and now the rheumatologist has increased the steroid dosage once again on a trial basis.....he told me that the latest research on PMR states that patients must just get used to living on steroids as there seems to be no other treatment that works....so he upped the dose of the prednisone - a terrible, awful drug to be living on....
the worst is laying in bed at night - the pain pills only take the edge off.... mornings are hard to get moving with the accompanying stiffness (PMR related)
chronic pain is exhausting so i feel tired all the time......
my 6 month check up mammogram and ultrasound is this thurs - let 's all think CLEAR,CLEAR, CLEAR.....i'm more scared and nervous than i thought.....
MEANWHILE....i keep dancing......
it is a true life-saver

Sunday, October 05, 2008

A Call to Arms by Anne Lamott

One of my favorite authors has this to say -read anything she has ever written - you won't be sorry


How to handle the fury brought on by this election? Register voters, hit the streets, pray. Stop talking about her. Talk about Obama. By Anne Lamott | September 16, 2008


I had to leave church Sunday morning when it turned out that the sermon was not about bearing up under desperate circumstances, when you feel like you're going crazy because something is being perpetrated upon you and your country that is so obscene that it simply cannot be happening.

I sat outside a 7-Eleven and had a sacramental Dove chocolate bar. Jeez: Here we are again. A man and a woman whose values we loathe and despise -- lying, rageful and incompetent, so dangerous to children and old people, to innocent people in every part of the world -- are being worshiped, exalted by the media, in a position to take a swing at all that is loveliest about this earth and what's left of our precious freedoms.

When I got home from church, I drank a bunch of water to metabolize the Dove bar and called my Jesuit friend, who I know hates these people, too. I asked, "Don't you think God finds these smug egomaniacs morally repellent? Recoils from their smugness as from hot flame?"

And he said, "Absolutely. They are everything He or She hates in a Christian."

I have been in a better mood ever since, and have decided not to even say this woman's name anymore, because she fills me with such existential doubt, such a sense of impending doom and disbelief, that only the Germans could possibly have words for it. Nor am I going to say the word lipstick again until after the election, as it would only be used against me. Or polar bear, because that one image makes me sadder than even horrible old I can stand.

I hate to criticize. And I love to kill wolves as much as the next person does. But this woman takes such pride in her ignorance, doesn't have a doubt in the world about her messianic calling, that it makes anyone of decency feel nauseated -- spiritually, emotionally and physically ill.

I say that with love. As we say in Texas. (Also, we say, 'Bless her heart.')

We felt this grief and nausea during the run-up to the war in Iraq. We felt it after the 2004 election. And now we feel it again.

But since there are still six weeks until the election, and since the stakes are as high as the sky, which should definitely not be forced to endure four more years of the same, we have got to get a grip. There are millions of people to register to vote, millions of dollars to be raised. We really cannot go around feeling flat and defeated, with the need to metabolize the rotten meat that this one particular candidate and the media have forced upon us.

One of the tiny metabolic suggestions I have to offer -- if, like me, you choose not to have her name on your lips, like an oozy cold sore (I say that with love) -- is to check out a Web site called the Sarah Palin Baby Name Generator. There you can find out what she and her husband would have named you if you had been their baby. My name, Anne, for instance, would be Krinkle Bearcat. John, her running mate, would be named Stick Freedom. George would be Crunk Petrol. And so on.

First of all, go find out what your own name would be. Then for one day refuse to use the name of these people who are so damaging to earth and to our very souls -- so, "I don't have to understand anything, it's all fuzzy math. Trust me. I'm the decider." From now on, when working for Obama, talk about Obama, talk about his policies, the issues, the economy, the war in Iraq, poverty, the last eight years, Joe Biden. You don't have to mention Crunk Petrol, or his sidekick, Shaver Razorback.

And you sure as hell don't have to mention Claw Washout -- she is absolutely, hands-down the most ludicrous person ever to be nominated. She's a South Park character. There was a mix-up. Mistakes were made.

Everything you need to know about how to bear up during these two months is already inside you. Go within: Work on your own emotional acre. Stand still, and hurt, and feel crazy. Then drink a lot of water, pray, meditate, rest. Rest is a spiritual act. Now, I am a reform Christian, so it is permissible for me to secretly believe that God hates this woman, too. I heard God slam down a couple of shooters while she was talking the other night.

Figure out one thing you can do every single day to be a part of the solution, concentrating on swing states. Money, walking precincts, registering voters, whatever. This is the only way miracles ever happen -- left foot, right foot, left foot, breathe. Right foot, left foot, right foot, breathe. The great novelist E.L. Doctorow once said that writing a novel is like driving at night with the headlights on: You can only see a little ways in front of you, but you can make the whole journey th is way. It is the truest of all things; the only way to write a book, raise a child, save the world.

As my anonymous pal Krinkle Bearcat once wrote: Laughter is carbonated holiness. It is chemo. So do whatever it takes to keep your sense of humor. Rent Christopher Guest movies, read books by Roz Chast and Maira Kalman. Picture Stick Freedom in his Batman underpants, having one of his episodes of rage alone in one of his seven bedrooms. Or having one of his bathroomy little conversations with Froth Moonshine. (Bless their hearts.) Try to remember that even Karl Rove has accused him of being a lying suck.

Reread everything Molly Ivins and Jim Hightower ever wrote. Write down that great line of Molly's, that "freedom fighters don't always win, but they're always right." Tape it next to your phone.

Call the loneliest person you know. Go flirt with the oldest person at the bookstore.

Fill up a box with really cool clothes that you haven't worn in a year, and take it to a thrift shop. Take gray water outside and water whatever is growing on your deck. This is not a bad metaphor to live by. I think it is why we are here. Drink more fluids. And take very gentle care of yourself and the people you most love: We need you now more than ever.

compliments of Zena Moon

p.s. - I have one of her OBAMA candles burning

Tuesday, September 30, 2008

autumn amazement



how blessed i am to have this kind of beauty every day.......the season of autumn has brought ms scarecrow and her family to dwell amidst the still blooming roses.... the ones right behind her are new today...
i am saddened that so many people have to worry where they will live as i pick this exquisite single rose to place at my bedside....

how sad it is that the country is in such turmoil with a very few rich white men directing the massive mess we are in..... and isn't it a coincidence that it all unfolds as the election draws closer........
don't tell me this wasn't all part of the plan to undo obama and let it seem like john boy is "saving the country"
let us send our good thoughts and energy to joe biden this week so that he can find the way to not be called a sexist for raising the important questions with princess sarah....
sadly he probably will be called that anyway.......that's the way it still is in this unequal universe we live in........

Monday, September 29, 2008

WEEKEND JOY



how's this for a weekend of pure JOY !!!!!!
having ben for a sleepover and lots of adventures.....just look at that beautiful face !!!!!!!!
and THEN.......
a neil diamond concert sunday nite.... and believe it or not - he can still do it ! was expecting maybe some voice or range loss but wasn't at all disappointed....all the old favorites and some from his newest album- he was on stage 2 hours straight with no intermission..... 5 encores!!!!!!!

I AM BLESSED..........

Monday, September 22, 2008

brain freeze

i wrote about the autumn equinox a week early - no one commented that i was off so that either means no one is reading this or no one knows what the equinox is anyway.....
today is the day !! the day when dark and light are balanced - when things are in balance in nature - i do hope the day brings me that balance -not one of my strong suits.....
-yesterday all my precious boys were here so i felt more than wonderful - the joy they bring is unmeasurable


-today the dog next door won't shut up so that isn't exactly balancing my body and spirit
-the beautiful bittersweet on my dining room table brings me memories of new england autumn which i dearly miss...... i sent for these branches from vermont - they come covered with leaves which you pick off and the heat of the house has all the yellow coverings fall off and the beautiful orange berries appear.....it amazed me what tremendous joy can be found in tiny orange berries!



May balance and a harvest of dreams fill your soul this gorgeous equinox day.....

Monday, September 15, 2008

BALANCE

today we celebrate the autumn equinox - the day when dark and light are equal -balance...........when we acknowledge the harvest of our gifts...
.....this harvest festival traditionally applies to the harvest of foods, yet in this day and age, the 'harvest' may also apply to the 'seeds of dreams and wishes' that were planted many months earlier. Now is the time to see if they have come true. Whether they have come true or not ... a ritual to thank the growing energies of the divine could be performed at this time. Lay upon your altar a sampling of your 'harvest'.... use it freely in a simple ritual........ even if your 'harvest' came up empty, IE: your dreams were not fulfilled, the God and Goddess should still be thanked for the effort put forth in your name.......
my dream of less pain and more energy have not at all been fulfilled - in fact the pain is pretty bad most days and nites.....yet i face the coming change of season with the hope that change can happen in my body......
i lay in bed every nite with the pain from head to toe..... especially in my legs, arms and back
thinking i'll get up and write about it.... but i don't have the energy.....
i lay there crying......what can i do with this pain....? how can i get it to be less? what can i do to keep moving the next day?
mornings , getting out of bed are awful - it takes a few hours to be able to move about.....
the medication that i take every 4 hours is a narcotic which i hate taking AND it doesn't seem to do much but take the edge off....certainly doesn't take the pain away......
there is still no certainty as to what is causing the pain - POLYMYALGIA, the medication Aromosin, arthritis, lymphedema or....???????
the beautiful full moon is watching me as i write.....she is a beautiful sign of light and hope....
I want to believe in that light and that hope......but constant pain is such a strong pull in the direction of dark.........
i haven't written much here lately as i know from the lack of response at anything but happy posts are not what people want to hear.....
pictures and posts of roses and 3 precious little boys are what people want to see and hear.......
i so wish that was the real story of life all the time, but sorry to say the pain way overwhelms everything else most days and nights......
may the light of the moon and balance of the equinox bring me strength and more hope......

Tuesday, September 09, 2008

Sooooooooooooooo true

All beauty of this world is wet with the dew of tears.

www.gratefulness.org
WORD FOR THE DAY
Tuesday, Sep. 9

Monday, September 01, 2008

Ingenuity




who says there is nothing to wonder at in the world.....besides the roses, sun, moon, stars and the coming of day and night....there is the imagination of a 7 year old.....
Liam decided that if he tipped over the hand cart, put the big wheel on top he would have a means of transportation for his cousin who enjoyed his afternoon story time on the sidewalk being driven up and down....
those big shots and their limos have nothing on this ride !!!!!!
these will remain two of my all time favorite photos.....by the way - i bought that big wheel for Liam's 2nd easter and it has become his favorite toy at nana's after 5 years !!!!! of course it's too small for him- but he doesn't care.... he likes to practice his skidding skills and now of course has a new use for it !!!!

Friday, August 29, 2008

so true.....


I awakened this morning to find this gift in my front garden circle
then opened my Word for the Day and found this waiting.....

www.gratefulness.org
WORD FOR THE DAY
Friday, Aug. 29
Don't be content with looking at a rose as beautiful flower. Look at her with Love, so that she enters into your heart and awakens other forces in your heart and soul.

Sunday, August 17, 2008

NIGHTLIGHT

ever since my breast cancer surgery, i have been on lots of different medications - some for the whole time, some intermittently, some for a period of time, some forever...
not sure which ones, but one or more has been causing quite disturbing dreams which wake me up almost nightly
i have never been one to remember dreams , yet these scary ones seem to hang on for a few hours or even days.....
last nite i had a particularly scary one where i was trapped in my bed between 2 men who were threatening me harm and i couldn't reach the phone to dial 911.... i struggled for a while and when i did reach the phone - it wouldn't dial.... i was terrified and the fear woke me up....
i had left my shade up because of the heat and as i awakened i saw this most incredible NIGHTLIGHT provided by the full moon -
SO awesome i had to get up and find my camera.....
stark naked i ventured into the backyard and of course not able to capture the full moon - i caught this glorious vision of light in the night sky....
it was exciting and beautiful and lulled me back to a peaceful sleep......
i wish for everyone in your darkness such a display of light.....
and hope that i will have many more escapes from ugly dreams like this incredible sight.....

Thursday, July 31, 2008

catching up

i am back at the keyboard tired, grouchy and overwhelmed at many levels after a 10 day trip to MA to visit my family.....
it was a great time being with them and i miss them a lot....however the humidity and heat wave did me in .... the medication i'm on causes horrific hot flashes through out the day and they were multiplied back east....
i truly need a vacation to recover - i spent far too much time driving..... didn't take the time to just hang out at the beach or anywhere for that matter.....
visiting family members, high school and college friends took up most of the time.....
i had a few trials of being lost and my phone out of service but managed to find my way "back home"
i almost succumbed to the notion of a GPS based on the lost experiences..... they do have a place , i guess......
flying did cause more swelling of the lymphedema but mostly it maintained itself - thankfully.....
i do now have some ugly blisters as the fluids are quite backed up.... the hope is to keep them as blisters - not break them which can lead to ugly infections.....
the plane trip back to s.j. was its own nightmare which i will write about next time.... my fatigue level is still pretty high right now and all i want to do is sleep......
traveling while doing lots of drugs and not being strong and able as i once was is quite an undertaking....
but i am here, safe and blessed to have a home to come back to......
more soon.....

Saturday, July 12, 2008

www.gratefulness.org
WORD FOR THE DAY
Saturday, Jul. 12
There are moments when I feel like giving up or giving in, but I soon rally again and do my duty as I see it: to keep the spark of life inside me ablaze.
Etty Hillesum
An Interrupted Life

Wednesday, July 09, 2008

ROUGH DAYS

i sit here - 2 fans going and still dripping hair and clothes....
i have been away from the computer for a few days as the heat is so unbearable that it actually hurts to just sit here and try to type...
the sleeve garment is out of the question for these past few eays. as it gets soaking wet very quickly
i'm sure the swelling is worse
the physical therapsit says it isn't but it feels that way in the heat....
the drugs i take to prevent cancer recurrence cause awful hot flashes
the prednizone for PMR (remember that ??!) causes hot flashes and the weather only adds to them...
much of everything else is the same except for an increase in pain medication to try and keep the pain at bay....it still is there but the edge is a little less....
a new dog hwleing next door after having a very quiet neighbor for 20 years has my nerves even more on edge than ususal......
on top of that the refrigerator and freezer quit in the midst of the heat yesterday - repairs to the defrost mechanism fixed it but cleaning out spoiled food and now today faced with lots of sticky towels, sticky shelves and a really sticky floor is adding to my frustration level....
the doctor is playing with a day on - a day off with the prednisone and i can feel my body going nuts with the change....
so to put it all together
whine, whine, whine......
all is can say is i have a right to whining....
i want my life back....and today it isn't in sight....

Tuesday, July 01, 2008

The Summer Day
by Mary Oliver

Who made the world?
Who made the swan, and the black bear?
Who made the grasshopper?
This grasshopper, I mean—
the one who has flung herself out of the grass,
the one who is eating sugar out of my hand,
who is moving her jaws back and forth instead of up and down—
who is gazing around with her enormous and complicated eyes.
Now she lifts her pale forearms and thoroughly washes her face.
Now she snaps her wings open, and floats away.
I don't know exactly what a prayer is.
I do know how to pay attention, how to fall down
into the grass, how to kneel down in the grass,
how to be idle and blessed, how to stroll through the fields,
which is what I have been doing all day.
Tell me, what else should I have done?
Doesn't everything die at last, and too soon?
Tell me, what is it you plan to do
with your one wild and precious life?

Tuesday, June 24, 2008

a scary pain

my "new' sleeve which is tighter and has a compression pad on the palm of my hand has a strong piece of thread - carpet type - on the seam between my thumb and forefinger....
it has been rubbing, chafing and hurting on that space....
i did not know there was a nerve right there and fri and sat i had horrendous pain shooting up my arm and it scared me....
i finally remembered my friend who also wears a garment - different than mine - but she had to get it adjusted as the nerve pain was caused by the area between thumb and finger was too tight....
i took off the new garment - put the old one back on and told my physical therapist about it yesterday.....
she took the new one to fix the seam so it won't cut or hurt...
i'm already worried as there is the beginning of a blister there and there is supposed to be no cuts, scratches, etc on this hand or arm......
I keep reading more lymphedema pages to learn more and more but they are pretty depressing with all the warnings and "rules" i did find a really good site for lots of answers about the condition.....
mostly everywhere says the occurence is low percentage and i had to fall in that low % range, that it is an ugly diagnosis... and there are lots of do's and dont's
if you want to know more here is a really informative place to go....and here is another really good site
i try my best to stay positive but the heat and this garment does me in physically and emotionally and people asking all the time about the garment brings up the discussion and reality of breast cancer......even tho i am cancer-free - it is very difficult to talk about....

Saturday, June 21, 2008

Quote for today

Milk-toast-ness is a sin. Neutrality in the heat of injustice is a sin. Passionlessness is a sin, a misuse of our love-energy.
Matthew Fox in Sins of the Spirit, Blessings of the Flesh

Friday, June 20, 2008



This picture is from one of my favorite websites
called HERONDANCE...................
they send out a beautiful free newsletter with art, poetry and reflections on our relationship with nature.
........they have prints, cards and books which make beautiful gifts. I know you will enjoy a visit to their site......
I sure would like a cooler solstice to celebrate as the thick, heavy compression sleeve is a nightmare to be wearing.... it is soaking wet with sweat inside and out.....i've had to take it off a few times today to let it dry out.....
and of course the heat doesn't help the swelling.....

Summer is the time when one sheds one’s tensions with one’s clothes,
and the right kind of day is jeweled balm for the battered spirit.
A few of those days and you can become drunk with the belief that all’s right with the world.
~Ada Louise Huxtable

Friday, June 13, 2008

meltdown

wed and today i had meltdowns at the physical therapy session.....
wed. -my therapist decided i ought to be wearing a stockinette sleeve underneath the huge garment to help absorb perspiration so my skin won't "breakdown" which is one of the dangers of lymphedema - just what i need is another layer in this heat....
today - the sleeve maker came by with a new design - tighter and higher up to my shoulder to provide more compression....i really had to struggle to get it on and was cursing and crying at him and the garment.... he means well but tries to cheer me up and keeps saying"come on, let's see that lovely smile....." even being a pacifist - i want to smash him with the garment
the heat makes all of this even more unbearable....
i am real crabby today.........good thing there is no one here to crab at.....
heaven hlep the comcast technician due here momentarily to see what is wrong.......
i am just about sure my TV has died ..... it's very old and its time is probably up.....
i'm in no mood to hear that the tv is gone.....

Monday, June 09, 2008

Heartsick again

June 30, 1981 NOW sponsors ERA Countdown Rallies in over 180 cities to draw attention to the ERA deadline of June 30, 1982, and to dramatize the wide support for the ERA.
Tim, Chris and I were in Boston and attended a rally there.........(I still have the t-shirt which now wouldn't even fit my right ankle....!!!!! )
then.................a year later........it was defeated.....as it has been over and over.....
I remember well that day when i heard the news and i cried.... my heart was sick.....
that same horrible feeling has been clinging these last few days as the news of Hillary's campaign suspension becomes real........






“ Section 1. Equality of rights under the law shall not be denied or abridged by the United States or by any State on account of sex.
Section 2. The Congress shall have the power to enforce, by appropriate legislation, the provisions of this article.
Section 3. This amendment shall take effect two years after the date of ratification."

Saturday, June 07, 2008

heart and body ache



My body continues to be in pain all of the time - nights are the worst....
add to that the pain in my heart for Hillary and for the dream shattered of seeing someome who looked like me in the oval office....
I am very sad today as she said goodbye to her campaign and only wish the following can ease my pain.....
"Although we weren't able to shatter this highest, hardest glass ceiling this time, thanks to you, it's got about 18 million cracks in it, and the light is shining through like never before," she said.
I believe that this picture shows some sadness that she of course cannot afford to show now or ever.....
today is a day for tears........





Sunday, June 01, 2008

Family Volleyball


Liam is getting real good at writing and likes to practice with notes....so sunday while the "grownups" were eating he composed this invitation for us....
(if you can't read the yellow it says volleyball game)
ben and ronan were wrapped up in a dvd of the backyardigans so note the invitation involves "one kid"...
turns out the volleyball game became much more interesting than tv to the little ones so after a few minutes of just the "1 kid" it turned into a full blown family adventure.....
i even played a few minutes with 1 arm and hit a few really good shots....